L-W-O Community supports primary and secondary lymphoedema by promoting emotional wellness, lymphatic health, self-care, patient empowerment, online and in the community.
Welcome to L-W-O Community.
Patient-Led Community
Supporting everyone affected by lymphoedema.
We are a patient-led community grounded in accessible knowledge, compassionate advocacy, and shared empathy. Newly diagnosed individuals, long-term carers, and changemakers all shape and strengthen this community.
We aim to empower.
Discover patient-designed resources that empower you to manage lymphoedema. Navigate this website, follow our social media updates, and explore practical insights on our YouTube channel.
Welcome to the L-W-O Community website! My name is Gaynor Leech, and I have been living with lymphoedema since 2011. We share practical insights that help you live well with lymphoedema. Here, you'll find non-medical information and support designed to empower and inform you on your journey. We invite you to explore and connect with others sharing similar experiences.
The L-W-O Community provides helpful hyperlinks to sources and organisations you may find valuable. Visit our carefully compiled signposting page.
Since its founding in 2013, the L-W-O Community has grown to a community of 4,500 people. We aim to show that lymphoedema treatment can be managed and improved; however, the NHS does not always provide supported self-care for those of us who live with this condition.
We empower you to manage lymphoedema effectively. Discover valuable insights and strategies that enhance your daily activities and improve your well-being. Together, we can make a positive impact on your health.
L-W-O Community is here for you; come join our welcoming Facebook support group and chat with members who can relate to you. Come join us here.
According to estimates, 450,000 people in the UK are now receiving treatment for lymphoedema (Source British Lymphology Society).
For years, myths about lymphoedema have persisted, but our mission at L-W-O is to dispel them. We empower you with a holistic self-management approach, enabling you to make informed decisions tailored to your unique needs.
Check out the BLS Myth Buster here...
Look out for #MythBuster on each webpage
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A note from our community:
Most of this website is freely available to everyone, reflecting our commitment to open support and shared learning. For those who choose to join our exclusive L-W-O subscribers’ group with a yearly subscription, we offer access to additional resources, heartfelt content, and opportunities that go beyond the public space, including future chat sessions and more ways to connect.
Your subscription helps us grow, deepen our impact, and continue creating safe, empowering spaces for everyone living with lymphoedema. If you’re ready to unlock the full experience and walk alongside us in this next chapter, we’d love to welcome you.
You can subscribe here
Thank you for visiting our website and standing with L-W-O Community in raising awareness of the everyday challenges faced by those living with lymphoedema. Your support helps us amplify voices, foster understanding, and build a more compassionate future.
Gaynor Leech
Founder and Patient Advocate of L-W-O Community