Welcome to L-W-O Community


A very warm welcome to L-W-O Community thank you for joining us.  I am here to help you understand what it is like to live with lymphoedema as I have lived with since 2011.  You will find on this website non-medical advice, support, tips and where necessary we will signpost you to resources or organisations that you may find helpful.

L-W-O Community was established in 2013 and we have grown into a community that is 4,000 strong. Whether you have primary lymphoedema, secondary lymphoedema or a lymphatic malformation we are here to provide non-medical information and support.  Lymphoedema can be managed and treated, we passionately believe in supported self-care, sadly this is not always available on the NHS, for those of us who live with this condition. 

Through this website we will show you how you can improve your life through daily routines and will explain the reasoning and the 'why' so that you can take control of your lymphoedema. Do not let your lymphoedema define who you are.

For a full range of the services, we provide follow this link …

"Lymphoedema exists, we exist"

It's all about Community

Graphics by Gaynor Leech

L-W-O Community's aim is to encourage our members to make informed choices.  We believe in patient empowerment and community engagement.


Graphics by Gaynor Leech

We could produce fact sheets however, with this website and our family website (link below) you will find all the information in one place.

L-W-O Community promotes Patient Empowerment and Community Engagement

Graphics by Gaynor Leech

Through our online posters and video presentations we can increase community engagement, educate, inform. and raise awareness of lymphoedema.

Massage Table


It is thought that the estimated number of people in the UK receiving treatment for lymphoedema is currently 450,000 (Source British Lymphology Society). 

Historically there are many myths surrounding lymphoedema and wherever possible we will debunk those myths and explain the reason behind them and the precautions you can take if necessary, giving you, personal choice in your selfcare. 

Check out the BLS Myth Buster here...

Look out for #mythbuster on each webpage

Below some of the Topics we cover

Skin Care Link

Skin Care

Compression link


Adult Ballet Class

Get Moving



Link to skin care page


L-W-O Community is here for you, come and join our friendly Facebook support group and talk to people who understand what you are going through.
Join us here...


Do you like what you see? L-W-O Community receives no funding, and we rely on the goodwill of our readers.  Please consider taking a yearly subscription so that we can continue to provide information for those who live with lymphoedema. Find details here... 

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