About L-W-O Community
Hi, I am Gaynor Leech and I started L-W-O Community in September 2013 having lived with Secondary Lymphoedema since May 2011. Originally it was started with the name L-W-O which stands for Lymph-What-Oedema. However, as we have grown adding more social media and a family website for parents whose children are born with lymphoedema or a lymphatic malformation it became clear that L-W-O was developing its own community.
For those of you that are familiar with L-W-O Community you will know my story and how I became a patient advocate, something that did not happen overnight. For those who do not know my story here is the shortened version.
Late 2010 I was diagnosed with Breast Cancer through a routine Mammogram. My breast cancer was not a lump it was in the tissue it would not have been found without the mammogram at such an early stage. To all intents and purposes my long-term prognosis was good, I had a small operation to remove the offending tissue and 15 days of radiotherapy to mop up any remaining cells.
At no time was I told that the radiotherapy while killing off the cancer cells would cause another problem and I would end up being diagnosed with the lifelong and incurable condition of lymphoedema. At the time of my diagnosis there was little help, support, or information that would help me understand my new diagnosis. Disbelief and anger, I felt doomed. Anger turned to a passion to improve not only my life but the lives of other people who were diagnosed with lymphoedema.
"I could never have imagined the journey ahead of me"
Meet The Team
Founder of L-W-O, Lymphoedema Patient Advocate, Self-Care Champion, Author, Blogger, Patient Representative European Patient Advocacy Group
Marie has been part of our team since January 2017. She first joined L-W-O in July 2015 she has two children one of whom has lymphoedema you may know her better as Healthy Cooking Mom
Sue has lymphoedema in her right arm, breast and torso following treatment for breast cancer in 2015/16. Now retired from teaching she particularly enjoys walking.
Sue joined L-W-O in January 2017.
I was diagnosed with breast cancer in 2017, after mammograms and scans. Unfortunately l developed lymphoedema & now have to wear a made to measure compression sleeve and glove. At least I'm still here to annoy my husband