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Terms & Conditions

 

Thank you for visiting our website www.lwocommunity.co.uk. Before using this website, be sure to read the Terms and Conditions carefully as use of this website will be subject to them.

Working online is challenging and often we have no control over much of what is said in social media posts.  Our aim is to offer a safe online experience this includes all our social media platforms plus all three of our websites therefore, we need to be careful of the answers we give.  We ask our members, supporters, and followers to refrain from posting until you have time to think through your answers before posting.  Our focus is advocacy, education, friendship, learning from one another, positivity, and support. 

We have evolved into our own Community online and we are fortunate to be invited to events in our local community therefore these terms and conditions will apply for all L-W-O Community activities.

  • L-W-O Community is an Independent not for profit patient association, accessible to any person who has Primary or Secondary lymphoedema or Lymphatic Malformations their caregivers, family, or friends. The L-W-O website is written by Gaynor Leech who lives with secondary lymphoedema and is written entirely from a patient's point of view and is not intended to be a substitute for independent medical advice.

  • The information on this website and our social media platforms is intended for use by UK residents.  

  • Our overseas visitors are welcome; however, we strongly advise all our visitors to consult their own health-care professionals.

  • By reading this page, as a member of L-W-O Community Support group, or followers of our community page, or other social media platforms, you are acknowledging our Medical Disclaimer at the bottom of this page.

  • Material on this website, our family's website and our social media platforms is for information only and is not intended to be a substitute for independent or medical advice.

  • Material on this website and across our social media platforms means any information that includes data, text, graphics, links, and any other material L-W-O Community publishes.

  • L-W-O Community accepts no liability in relation to typographical error.

  • We accept no liability for third party information.

  • The L-W-O Community websites and social media platforms contain links to other websites.  These are provided as useful sources of information and inclusion of such links to other websites does not imply endorsement by L-W-O Community, of any kind as to their content or quality.  For further details please read our website linking policy.

  • We will not tolerate any form of verbal abuse, foul language, name calling or harassment across our social media platforms and any member who doesn't adhere to this policy will be removed or blocked.  For further information please check our safeguarding policy.

  • On social media writing in capital letters is deemed to be shouting and therefore is considered aggressive and will not be tolerated in our community.

  • For the safety of our members, do not re-post content from within the closed group and post elsewhere. This includes screenshots.

  • Material from our Community Page which is our public page can be shared if L-W-O Community receives the credit.

  • If you share information from another social media platform or someone else's story, please make sure you have permission to share the post or story as L-W-O Community accepts no liability for these posts.

L-W-O Support Groups

  • The L-W-O Support Group is a private group, members posts, and conversations are private within the group, therefore at no time should these be shared outside the groups.

  • At no time should screenshots be taken of private conversations.

  • L-W-O Community ask members to be respectful towards other members

  • We ask members to think before they write a post or post photographs that other members might find upsetting or offensive.

  • Admin and moderators reserve the right to remove written posts and photographs that do not comply with our Terms and Conditions

  • Admin and moderators reserve the right to remove written posts or photographs other members find upsetting or offensive. 

  • We are an AD and Spam free zone

  • We cannot allow individual Fundraisers or Crowd Funding by individual members

  • L-W-O Community very occasionally receives complaints from members, and we respectfully ask members to follow our complaints procedure which you will find below.

"We will not tolerate Blatant Self Promotion

We will not tolerate any form of verbal abuse, foul language, name calling or harassment across our social media platforms and any member who doesn't adhere to this policy will be removed or blocked".    

Complaints Policy

 

In the first instance please email Gaynor Leech at: 

lymphwhatoedema@gmail.com please do not send an official complaint via Messenger.  

 

We respectfully ask members of our Facebook support groups to direct the complaint to us via email. 

 

Complaints reported via Facebook run the risk of the group being sanctioned or removed. 

 

L-W-O Community takes all complaints seriously and will deal with them as quickly as possible.

 

Please note:  Complaints will usually be acknowledged within 48 hours during the working week.  They will not be dealt with on a Saturday or a Sunday and will be dealt with on the next working day.

 

Our aim:  Is to deal with the complaint within seven working days.

In the event:  No satisfactory conclusion can be reached after seven days the complaint will be put out to the L-W-O support group members for adjudication.

Page produced by Gaynor Leech

Our Terms and Conditions were first produced in October 2016

Page last updated 25/01/2023

Planned review January 2024

The L-W-O Community Websites are ongoing project therefore, they are reviewed regularly, and we reserve the right to update and remove information as is necessary.  Terms and Conditions are reviewed on a yearly basis.

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